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      07-28-2011, 01:26 AM   #1
HaZe_X
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Gotta vent!

I have M.S, I was diagnosed in 2010. For the past 3-4 months Ive been having chronic leg and knee pain, which is due to the M.S My Neuro isnt doing anything about the pain. Only thing that helps is my percocet 10/325. Need to take 20mg-30mg at time to relive the pain, otherwise I cant walk at all. Reason I have those is because Of a torn roator cuff, (2005 I had surgery, 2008 I had surgery) and I had an MRI 3 weeks ago showing its torn, so I refuse a 3rd surgery.

Anyway, I cant expect my orthopedic DR. to keep prescribing me Percocets, since he wants me to see a pain management DR now (He is aware of my M.S pains).

So I go see a Pain management DR, that my orthopedic DR recommended. Guy goes over my history, He takes my blood pressure, goes over my history for 5 min. Says 20-30mg of Oxycodone is to much, his patients dont even take that much (this guy just graduated med school in 2005), which is when I started with the percocet. Wrote me an MRI for my lower back, lord knows why. I have M.S thats why I have the pain (Its a known fact). So Ive been shrugged off yet again. I feel like Im going to be in pain for ever, I cant work right now because of the amount of pain I am in. Pain management, you think they would be willing to help. Ive fallen down stairs, I loose my balance sometimes, I mean C'mon now.

Neve blocks dont work, tired those, Tramadol, mobic are crap. Only thing that works for me Like I said is oxycodone. And if these DR's had half a brain they would say, well he is taking 3 percocets, thats 30mgs of oxycodone, and 975mg of Acetametaphin in one shot, why dont we give him a 30mg pill with no tylenol.

/rant.
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      07-28-2011, 01:32 AM   #2
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He could be trying to do something to stop/ease the pain without getting you hooked on pain meds. They are a pain clinic, they deal with it all day and probably want to attempt all possibilities before they prescribe pain meds. Maybe get a second opinion from another pain clinic doctor and if the same thing happens see what they can do before you resort to just pain meds, they are very addicting.
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      07-28-2011, 01:50 AM   #3
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Quote:
Originally Posted by CollinsE90 View Post
He could be trying to do something to stop/ease the pain without getting you hooked on pain meds. They are a pain clinic, they deal with it all day and probably want to attempt all possibilities before they prescribe pain meds. Maybe get a second opinion from another pain clinic doctor and if the same thing happens see what they can do before you resort to just pain meds, they are very addicting.
Maybe you misunderstood me. THe pain guy didn't do anything for me, took my BP, wrote an MRI and did NOTHING.

IT was my ortho who tried the nerve blocks, tramadol, mobic and such, who also prescribes me the percocet. But wants me to see a Pain Management DR.

I know full on about the addiction of opiates.

Im frustrated thats all, dealing with severe pain sucks, and going to a pain DR, that does nothing is a total waste.
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      07-28-2011, 01:59 AM   #4
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Quote:
Originally Posted by HaZe_X View Post
Maybe you misunderstood me. THe pain guy didn't do anything for me, took my BP, wrote an MRI and did NOTHING.

IT was my ortho who tried the nerve blocks, tramadol, mobic and such, who also prescribes me the percocet. But wants me to see a Pain Management DR.

I know full on about the addiction of opiates.

Im frustrated thats all, dealing with severe pain sucks, and going to a pain DR, that does nothing is a total waste.
Maybe you misunderstood me, I understood your pain doc did nothing, what kind of clinic would they be if they just wrote pain med scripts to every single person that came through. You were referred to get looked at, not referred to get pain meds. The ortho could of done that, he was hoping the pain doctor could find another avenue to ease the pain, they are going to try as much as possible before they take the last resort and just give you pills. Let them try what they can before you result to the rest of your life hooked on pain meds.
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      07-28-2011, 02:12 AM   #5
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Quote:
Originally Posted by CollinsE90 View Post
Maybe you misunderstood me, I understood your pain doc did nothing, what kind of clinic would they be if they just wrote pain med scripts to every single person that came through. You were referred to get looked at, not referred to get pain meds. The ortho could of done that, he was hoping the pain doctor could find another avenue to ease the pain, they are going to try as much as possible before they take the last resort and just give you pills. Let them try what they can before you result to the rest of your life hooked on pain meds.
Tell us more Collin....



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      07-28-2011, 02:14 AM   #6
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Originally Posted by CollinsE90 View Post
Maybe you misunderstood me, I understood your pain doc did nothing, what kind of clinic would they be if they just wrote pain med scripts to every single person that came through. You were referred to get looked at, not referred to get pain meds. The ortho could of done that, he was hoping the pain doctor could find another avenue to ease the pain, they are going to try as much as possible before they take the last resort and just give you pills. Let them try what they can before you result to the rest of your life hooked on pain meds.
But the thing is they did nothing except write me a lower back MRI. Which is non-sense. And I quote from the DR "I dont know why your Ortho DR sent you here, there is nothing I can do for your shoulder" His suggestion for my leg pains was to exercise more.
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      07-28-2011, 02:14 AM   #7
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Quote:
Originally Posted by CollinsE90 View Post
Maybe you misunderstood me, I understood your pain doc did nothing, what kind of clinic would they be if they just wrote pain med scripts to every single person that came through. You were referred to get looked at, not referred to get pain meds. The ortho could of done that, he was hoping the pain doctor could find another avenue to ease the pain, they are going to try as much as possible before they take the last resort and just give you pills. Let them try what they can before you result to the rest of your life hooked on pain meds.
U gonna be a doctor collins?
Thought u were studying to become a lawyer haha
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      07-28-2011, 02:16 AM   #8
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U gonna be a doctor collins?
Thought u were studying to become a lawyer haha
Nope, just watch too much of this




but serious, I'm pretty sure that is what his doctors are doing
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      07-28-2011, 02:30 AM   #9
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Nope, just watch too much of this




but serious, I'm pretty sure that is what his doctors are doing
tv doesnt = real diagnosis....
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      07-28-2011, 06:23 AM   #10
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Montel Williams was on Dr. Oz yesterday (big advocate for legalization of medical m.j.); quoted as saying he smokes everyday for his MS and since has not had a single plaque develop and helps him have a better quality of life.

NJ is a legalized state - not pushing m.j. as its not my thing - but a possible option for some.
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      07-28-2011, 07:38 AM   #11
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I am tryng to get a better understanding of what your post said
Have you been taking 10/325 since '05? and if so at what daily dosage?
most Doctors would have sent you to pain management years ago, I understand chronic pain and have been living with it for the last 2 years.

I was sent to pain management also after MRI'S and X-Rays indicated degenerative disc disease and cervical spondylosis, they then did blocks, steroid injections, rhizotomy to no avail. countless meds arthritis,nerve,and even anti depressants which I found to be the WORST thing ever, I never understood depression and my heart goes out to people that have to take that poison.The only relief I get is the vicodin that they finally started prescribing me after the third or fourth visit. Opiates are a very slippery slope as you are probably very aware and I have struggled with this as I have seen far too many people lose everything over pill addictions.

Pain doctors usually will not start writing you scripts until they know you are in need and not just Dr. shopping or trying to feed your addiction. You are guilty until proven innocent in most cases. The DEA is going over every script they write due to the huge nationwide abuse of opiates, so they are going to dot their i's and cross their t's before you get "accepted"

Get the MRI done and go back and talk to the doctor he is going to suggest various forms of treatment before he prescribes narcotics as this is usually a last resort.
hope things get better for you
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      07-28-2011, 08:54 AM   #12
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Honestly, just shop around for another doctor and get a second opinion. There's no reason why you should have to put up with one who doesn't suit your needs. Definitely find a neurologist who specializes in MS.
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      07-28-2011, 09:12 AM   #13
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Quote:
Originally Posted by ghosthi32 View Post
tv doesnt = real diagnosis....
Yea I was being completely serious and using nothing but Dr House as my reasoning

Come on guys, its common sense, why would the Ortho send him to a pain clinic to JUST get pain meds, when he can prescribe them himself

Think guys
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      07-28-2011, 09:27 AM   #14
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Quote:
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I am tryng to get a better understanding of what your post said
Have you been taking 10/325 since '05? and if so at what daily dosage?
most Doctors would have sent you to pain management years ago, I understand chronic pain and have been living with it for the last 2 years.

I was sent to pain management also after MRI'S and X-Rays indicated degenerative disc disease and cervical spondylosis, they then did blocks, steroid injections, rhizotomy to no avail. countless meds arthritis,nerve,and even anti depressants which I found to be the WORST thing ever, I never understood depression and my heart goes out to people that have to take that poison.The only relief I get is the vicodin that they finally started prescribing me after the third or fourth visit. Opiates are a very slippery slope as you are probably very aware and I have struggled with this as I have seen far too many people lose everything over pill addictions.

Pain doctors usually will not start writing you scripts until they know you are in need and not just Dr. shopping or trying to feed your addiction. You are guilty until proven innocent in most cases. The DEA is going over every script they write due to the huge nationwide abuse of opiates, so they are going to dot their i's and cross their t's before you get "accepted"

Get the MRI done and go back and talk to the doctor he is going to suggest various forms of treatment before he prescribes narcotics as this is usually a last resort.
hope things get better for you
Same here. Degenerative disc disease and osteoarthritis, but no cervical spondylosis (as far as I know. I don't even know what the fuck that is anyway). Pain management specialists are usually (in my personal experience) going to try to exhaust the less dangerous treatment methods before getting you hooked on narcotics. The physical therapy helped me out a bit, but in the end there's only so much they can do. In my case, it was enough that I don't want/need any narcotics to control the pain on most days, so I'm grateful they did all that.

I can't speak for MS though. As Cy alluded to, has OP tried medicinal MJ? It works for the only person I know who has MS, and she seems to be a big proponent of its effectiveness.
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      07-28-2011, 09:42 AM   #15
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Looks like my ignorant opinion is pretty accurate. Just give them a couple visits to see what they can do, if they can't do much they will resort to narcotics. I know a middle aged lady who had to retire early because of her back, and smokes marijuana and it has done better than any narcotic she's had. I don't think NJ is decriminilized yet with marijuana, but I'm sure you could find it somehow.
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      07-28-2011, 11:32 AM   #16
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Find an MS specialist. Look into antidepressants that are also used for neuralgia. Don't take oxy because you don't sound responsible and will be on it forever.
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      07-28-2011, 01:55 PM   #17
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Quote:
Originally Posted by CollinsE90 View Post
Maybe you misunderstood me, I understood your pain doc did nothing, what kind of clinic would they be if they just wrote pain med scripts to every single person that came through. You were referred to get looked at, not referred to get pain meds. The ortho could of done that, he was hoping the pain doctor could find another avenue to ease the pain, they are going to try as much as possible before they take the last resort and just give you pills. Let them try what they can before you result to the rest of your life hooked on pain meds.
Like every pain management clinic in Florida?

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Originally Posted by JayKay335i View Post
Find an MS specialist. Look into antidepressants that are also used for neuralgia. Don't take oxy because you don't sound responsible and will be on it forever.
Yeah, i would only start using oxy as a last resort. I know you're in a lot of pain, OP and that's probably why you reek of desperate frustration even over internet. But if you get hooked on oxy, you're on a steep spiral slope downwards. Watch some documentaries for more perspective; it's scary stuff!
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      07-28-2011, 02:22 PM   #18
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OP, sorry to hear about all the pain you are having with your MS. It really is a debilitating disease, so you need to find doctors that are flexible and willing to work with you.

Pain management is a tricky business. Newer docs tend to err on the side of caution, to avoid looking silly by prescribing to a druggie or malingering individual. That's clearly not the case with you. Older physicians are usually more understanding and flexible in their pain medication administration - although this is not a hard and fast rule.

Are you taking meds for your MS? What are you on? Interferon therapy? What sort of MS do you have? Is it progressive or of the remitting/relapsing variety?

Also, find an MS specialist, if you're not seeing one already. ideally someone who is more aware of pain management, so you can work on a combined approach. Neurology/pain mgmt is a relatively new subspecialty, but you should be able to find someone. Academic centers are a good place to start.

To the others who say he shouldn't be on stronger pain medication - only he can really evaluate that. Pain management is far from a perfected science, while pain itself can be absolutely, utterly debilitating; until you have experienced it, it is very, very hard to understand what the OP is going through. i am of the camp that everything should be done to reduce pain to at least a bearable level, risk of addiction be damned. I would rather have a patient with a chronic condition risk addiction and withdrawal than have them spend months or years of their life in agony.

Last edited by Echo M3; 07-28-2011 at 02:39 PM.
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      07-28-2011, 02:45 PM   #19
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Addiction also comes with tolerance, making him ALWAYS need something stronger. At first it will be 1 pill every few hours, then 2, 3, 4. After that trip to a doctor to get stronger meds and repeat. It is never ending, but something else might be able to be done to bring the pain to bearable that doesn't require constant narcotics.

I wish you the best OP, hopefully someone figures out a regiment that gives you some relief.
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      07-28-2011, 02:53 PM   #20
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Sorry to hear, I agree many doctors suck and don't have a clue.


Have you had your Vit. D levels checked?


Low Serum Vitamin D Linked to Multiple Sclerosis

A new study shows that multiple sclerosis (MS) is linked to low levels of vitamin D in the blood, but its unclear whether vitamin D deficiency is a causal factor in the disease or whether vitamin D supplements would protect against it.

Alberto Ascherio, M.D., Dr.P.H., a professor of nutrition and epidemiology at the Harvard School of Public Health in Boston, examined the connection between vitamin D and MS by accessing medical records and blood samples from more than 7 million U.S. military personnel. He found that in some soldiers with MS, vitamin D levels in the blood drawn as a routine matter several years before they were diagnosed were lower than in soldiers without the disease. The study was supported by the National Institute of Neurological Disorders and Stroke (NINDS), and appeared in the December 20, 2006 issue of the Journal of the American Medical Association.*

http://www.ninds.nih.gov/news_and_ev...vitD_serum.htm
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      07-28-2011, 03:47 PM   #21
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Sorry to hear, I agree many doctors suck and don't have a clue.
Strongly disagree.
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      07-28-2011, 08:14 PM   #22
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I have M.S, I was diagnosed in 2010. For the past 3-4 months Ive been having chronic leg and knee pain, which is due to the M.S My Neuro isnt doing anything about the pain. Only thing that helps is my percocet 10/325. Need to take 20mg-30mg at time to relive the pain, otherwise I cant walk at all. Reason I have those is because Of a torn roator cuff, (2005 I had surgery, 2008 I had surgery) and I had an MRI 3 weeks ago showing its torn, so I refuse a 3rd surgery.

Anyway, I cant expect my orthopedic DR. to keep prescribing me Percocets, since he wants me to see a pain management DR now (He is aware of my M.S pains).

So I go see a Pain management DR, that my orthopedic DR recommended. Guy goes over my history, He takes my blood pressure, goes over my history for 5 min. Says 20-30mg of Oxycodone is to much, his patients dont even take that much (this guy just graduated med school in 2005), which is when I started with the percocet. Wrote me an MRI for my lower back, lord knows why. I have M.S thats why I have the pain (Its a known fact). So Ive been shrugged off yet again. I feel like Im going to be in pain for ever, I cant work right now because of the amount of pain I am in. Pain management, you think they would be willing to help. Ive fallen down stairs, I loose my balance sometimes, I mean C'mon now.

Neve blocks dont work, tired those, Tramadol, mobic are crap. Only thing that works for me Like I said is oxycodone. And if these DR's had half a brain they would say, well he is taking 3 percocets, thats 30mgs of oxycodone, and 975mg of Acetametaphin in one shot, why dont we give him a 30mg pill with no tylenol.

/rant.
That sucks man, what type of MS do you have?
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